IN BRIEF
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A daily struggle: Sandrine fights for the future of Enzo, her autistic son, in Gleizé #
Sandrine, a devoted mother of Enzo, faces daily challenges that mark their life in Gleizé. Since her son was diagnosed with a severe autism spectrum disorder at the age of five, she has shed light on the reality faced by families navigating this complex journey. This authentic narrative highlights not only her struggles but also her unwavering commitment to ensuring a promising future for Enzo.
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Enzo’s diagnosis: a upheaval
In 2015, Enzo’s family’s life was radically transformed by his autism spectrum disorder diagnosis. This moment, often described as a painful shock, opened the door to a complex reality where each day presents its share of challenges. Sandrine recalls the adjustment period, the search for information, and the pressing need for an understanding of her son’s specific needs.
A mother, a multifaceted role
Over the years, Sandrine has become aware of her role as a mother but also as a caregiver. She must juggle her family responsibilities and the necessary administrative procedures to obtain the appropriate support for Enzo. This dual role demands remarkable endurance, meticulous organization, and great mental strength. “Every day is a new battle,” she admits, illustrating the reality of her daily life.
The challenges of school inclusion
School inclusion remains a complex issue for Enzo and his mother. The difficulties encountered in obtaining the necessary resources, such as the support of a school life assistant, exacerbate the situation. Enzo, who requires adaptations to follow a normal educational path, sometimes finds himself without the essential support he needs, creating tension and anxiety within the family.
Struggles for equitable rights
Sandrine does not just fight for her son; she also advocates for the rights of autistic children within the Gleizé community. Her involvement in local associations reflects her commitment to raising public awareness about the realities faced by families affected by autism every day. “It is essential to make our voices heard,” she declares, determined to change mindsets.
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Victories to celebrate
Despite the enormous challenges, Sandrine and Enzo also experience moments of joy. Small daily victories, whether it’s a new skill acquired by Enzo or progress in his school integration, brighten their journey. Every step forward is welcomed as a true triumph. “These moments warm the heart and remind us why we fight,” Sandrine proudly confides.
A message of hope
Through her struggles, Sandrine also conveys a message of hope to other families facing similar situations. Her ongoing commitment and fervent determination show that, although the path is fraught with obstacles, a better future for Enzo and other autistic children is achievable. Perseverance and solidarity are the keys that can pave the way towards an inclusive and understanding world.